Does anyone have a teenage child who's been diagnosed with Sjogrens Syndrome? What are the main symptoms?

Does anyone have a teenage child who’s been diagnosed with Sjogrens Syndrome? What are the main symptoms?

My 17 yr. old daughter got the diagnosis when she was 15, and we went through a horrible 6 months. I think she’s in a remission, but another doctor said she doesn’t have it? What is your experience with this disease? Symptoms? Remissions? Just anything you can tell me! I understand this is fairly rare in children, and there’s not enough data to track it in children / teenagers! I’m wondering if she really has it, or if it’s just going to burst back into her life again unexpectedly! It was total misery – she had to be on homebound school as it affected her joints so bad, she could barely walk!! Migraines, blackouts, couldn’t swallow well, no taste to food anymore, reflux, heart palpitations, paranoia, dry eyes, mouth, red patches over eyelids, ice-cold feet and legs, felt like feet were disconnected from her body, sharp shooting pains anywhere, including abdomen, blurry and 10 second losses of vision, feet went numb, memory went bad and is still not good. Much more! Help?!!